Kendall was born in February 1999. He has 2 older brothers, Tevin and Mikey, who he adores.

Kendall was jaundiced from birth. He was also very, very fussy. His doctors ordered a liver work-up at 10 weeks and he was immediately placed in PICU. He had a liver biopsy and they thought he had biliary atresia. He was 5 minutes away from having a Kasai performed when the surgeon said it was not biliary atresia after all. It took two more months for the doctors to confirm Alagille Syndrome.

On top of all of the complications of his disease, Kendall has
asthma and chronic ear infections. His itching was very extreme and he never slept more than 3 hours at a time, night or day. He was miserable. He had been on every medicine known to relieve the itching to no avail. We thought a transplant was the only way to help him, even though his liver was not that bad. Fortunately, Kendall got to be part of a study about Partial Biliary Diversion and Alagille Syndrome. He had the procedure in April 2002.

Since the procedure Kendall acts like a new kid. He is very happy all of the time. He still itches, but it does not control his day anymore. We have issues with the bags and his stool output, but we are glad he had it done. Kendall got a wish from the Indiana Wish Fund to got to Disney World in August. He was so amazed and I was so happy he got a chance to meet his favorite character without scratching.