By her mom, Julee Emmalee Olivene is our beautiful daughter born with Alagilles Syndrome.  Emma is what we call her and her middle name is from her Great Grandma Olivene.  Emma is just about the sweetest baby girl you would ever meet and she is definitely spunky too.

Emma was diagnosed with Alagilles at 2 weeks of life,  She is 8 months old now and learning to crawl.  She says Mama, Dada and is starting to wave.  She is a daddy's girl and can eat more vanilla yogurt than anyone I have ever met.  We are very optimistic about her future and have turned to the Lord for strength and support. Emma has brought more love and joy to use than anything on this earth and she has taught us not take life for granted and to live each moment with God by our side.  We truly are blessed to be her parents.

Our journey with Emma has just begun.  I can't say it has been easy but when I look into her eyes and see them dance with glee my heart gets a little lighter and everything seems to be Ok at that moment.  When Emma was in the NICU the nurses would all comment on how loud she could cry.  "The girl has a set of lungs" they would say.  I knew then that my baby was a fighter and had a little spirit on her that no one was going to stop.  Emma does not cry much these days.  She even tolerates blood draws and doctors.  She enjoys trying to steal their name badges the most.

Thanks for reading our story.