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carson by his parents, rhonda and travis
Carson arrived in April 2001 and we joyfully spent the first 4 weeks of his life at home. When he became jaundiced at 4 weeks, we began testing, which led to the diagnosis of biliary atresia at 7 1/2 weeks. During this time we also discovered Carson had a heart defect, double outlet right ventricle, and was a carrier for Alpha 1 Antitrypsin Deficiency. Carson did well the first few months post-Kasai.

By September his liver function tests had begun to elevate. The decision was made to repair his heart defect, sooner rather than later, as it would need to be fixed before a looming liver transplant. His open-heart surgery was October 23, 2001. He sailed through heart surgery. However, his liver did not like the stress and he went into acute liver failure. Over the next weeks his total bilirubin soared to 35 and he went into acute kidney failure (due to the liver failure). Twice we tried to do a living donor transplant with me (Mommy) as his donor. But both times Carson spiked temps and the surgeries had to be canceled.

December 2001 Carson received his gift of life. We are eternally grateful to our donor family for the ultimate gift. Words can not convey the gratitude and thanks we feel and they are never far from our thoughts and prayers, along with their little angel.

We are so thankful for the talented medical staff that cares for Carson. He recently turned two and is a spirited and independent little boy. He loves “Blue’s Clues,” coloring and playing outside. Because of the medical stress he went through, Carson has a mild-to-moderate hearing loss and has had hearing aids since December 2002. He is doing wonderfully with his aids and also knows a number of signs.

Carson is truly a miracle boy and is the product of many, many prayers. Special thanks to our CLASS family for their love, support and prayers as well!
 
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