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Alexandra (allie) by her mom and dad, Alexander and Kathleen

Our daughter Alexandra Kathleen  was born on August 2004.  She was a beautiful healthy little girl.  At her 2 month appointment my husband mentioned to the doctor that her eyes were very yellow and have been that way for at least 2 weeks.  The doctor sent us that day to get blood work and were told her liver results were off.  We went the next day to the hospital for an ultrasound.  The ultrasound revealed that our daughter had no gallbladder or ducts connecting to the liver.  We were told this was called biliary atresia.  Something we had never heard of before.  Our daughter was sent to surgery in November for the Kasai Procedure. She came out of surgery with flying colors.  We were made aware she would eventually need a liver transplant, but this procedure should give her time to get bigger. 

This was not the case.  We went through the next few months with a lot of crying and frustration.  She began to have acsities.  This made us very nervous and her very uncomfortable.  We were admitted to the hospital in December and she received her transplant in January.  This came a lot sooner than we had thought, but thank God it did. 

Our daughter is now 3 months post transplant and is doing amazing.  She inspires and amazes us everyday.  We are so thankful to the donor family, we can only say thank you. However, it just never seems enough. 

We have made many friends through the process and are so grateful for all their help also. We are thankful for everyday we are given with our beautiful little girl who has been through so much in such a small time.  Allie is our gift from God. 

 
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